We had a slow and quiet day on the 28th as Kenzie packed to leave and Michellie spent quiet time reading and watching TV. It was the calm before the storm. After a toss and turn night we awoke at 5:30 am on the 29th to take MacKenzie to the airport. He headed off in anticipation of home, and New Year's plans, and hopefully a job prospect too. He was kinda sad to leave us, but he needed to get back to living and doing what teens do. We headed back to the apartment after a quick Timmy's breakfast at the airport thinking that we would be on the road home by noon. We arrived at the hospital for our 9 am clinic appointment. Michellie was trying hard to be awake, but she had kinda got used to the freedom of sleeping in, and she really comes to life around 10 pm actually. The pharmacy was very busy, so she waited a few hours for her chemo. During the wait she did manage to eat a muffin and drink some water, but not a lot. Within an hour of the chemo going in, Michellie became extremely hyper and "chatty Cathy" (for those of you who had one of those dear dolls). Then her head became extremely itchy, and she broke out in hives all over her scalp and neck. They quickly gave her Benadryl to calm the reaction, and that completely knocked her out. For the next 4 hours she came in and out of consciousness with nausea and an intense headache. By 4 pm we were trying to get her to a wheel chair, as she could not stay in the clinic as it was closing. Before we could wheel her to face the door she was violently ill. Our poor dear girl was rehooked up to intravenous and they found her a bed on the 7th floor for the night. She was wheeled by bed to the ward, and then her blood pressure took a dive to extreme lows. With more fluids and meds, she managed to climb through this incredible blast closer to midnight. For the rest of the night, she slept relatively well, and was up to eat a few crackers and toast periodically. This morning she is resting and is tired, and remembers only snippets of yesterday (thank God)!.
Thinking we were going to be heading home, we had packed up the apartment, handed back keys and parking passes, changed bedding etc. The cars were loaded and ready. At 4 pm, with resignation and fatigue and worry we were devastated. Our social worker was called in, and she quickly found us a room at the Delta Hotel where they have a special program for Christmas called "Home for the Holidays". We could have gone back to the apartment, but we also just needed to crash. David took the first shift of caring for Michellie and Michelle went for a shower, food and a good nights sleep. The hotel was incredibly helpful, and they took care of little details for us. So, after a solid 6 hours, Michelle is back at the hospital and David has headed for his turn of pampering. He didn't get supper, so breakfast was sounding very good to him, as well as a big bed all to himself!
We are not sure what today will bring, but we are just so happy to see Michellie's eyes open and aware. They are truly the most incredible brown eyes! We know the road is a long one, and that there will be lots of hills and valleys, but it never truly prepares you for the anguish of watching your daughter fight for her life. We thank you all for continuing to keep us in your prayers and it really does lift us up to know that we have so many family and friends helping us through this. We can feel your love and we are comforted by how it feels through these tough times. We are also encouraged by all those who have walked this path before us who are supporting us from their triumphant paths in life - this gives us great hope. Thank you for your advice and for your experiences to share. We do look forward to when Michellie is well enough to make it home to her own bed, and in the meantime, we are so grateful for the incredible team at the IWK who are helping her through this. I hope my next blog to you will be from home and include some antic about our kitties that we are missing so much. They will be an incredible distraction for us and a huge source of comfort for Michellie when she can hold them again. Thank you everyone and God Bless.
December 14th marks the day that our lives changed instantly with Michellie's diagnosis of Hodgkins Lymphoma. Please keep up with her journey by returning here often.
From Louise L. Hay - "Heart Thoughts - A Treasury of Inner Wisdom"
Every Hand that Touches Me is a Healing Hand
I am a precious being and loved by the universe. As I increase the love I have for myself, so too does the Universe mirror this, increasing love ever more abundantly. I know that the Universal Power is everywhere, in every person, place and thing. This loving, healing power flows through the medical profession and is in every hand that touches my body. I attract only highly evolved individuals on my healing pathway. My presence helps to bring out the spiritual, healing qualities in each practitioner. Doctors and nurses are amazed at their abilities to work as a healing team with me.
From Louise L. Hay - "Heart Thoughts - A Treasury of Inner Wisdom"
I am a precious being and loved by the universe. As I increase the love I have for myself, so too does the Universe mirror this, increasing love ever more abundantly. I know that the Universal Power is everywhere, in every person, place and thing. This loving, healing power flows through the medical profession and is in every hand that touches my body. I attract only highly evolved individuals on my healing pathway. My presence helps to bring out the spiritual, healing qualities in each practitioner. Doctors and nurses are amazed at their abilities to work as a healing team with me.
From Louise L. Hay - "Heart Thoughts - A Treasury of Inner Wisdom"
Feeling so bad for you. Had the rug pulled right out from under you so quickly! Chemo is a trickster...but now the Dr's know some of the reactions to expect for Michellie. Hope you are able to travel home very soon...love and hugs once again to you.
ReplyDeleteMy oh my - what a day for all of you. Poor little Michellie. Mitchell was here this morning and we were talking about this whole thing - his good friend Katie has a year in since her diagnosis of the same cancer - she is now cancer free - her hair is a nice short style after growing back - but her journey was tough initially too - but her friends and family were there for her - just like you guys. We'll keep calling to the heavens and you guys hold her tight. Take care and we'll see you when you get home. Give her a hug from me.
ReplyDeleteMJxo
Wow. My heart just aches for you all. I wish they had a "forget" pill for the parents! But I'm really glad to hear that Michellie is a bit forgetful these days. I'm sure that there will come a day when this is all just a blur for her. But your parent's hearts will never be the same. Knowing you two, this will only strengthen you and make you better people (if that is possible. But in the meanwhile...ouch!
ReplyDeleteLove you lots & will continue to pray,
Charmaine
What a rotten experience. There's no way around it. Chemo sucks. But it saves your life. Sounds suspiciously like Michellie had an allergic reaction (or "adverse drug reaction"). If she needs to have this drug again, it'd be really smart if they would give her the Benadryl first and a bolis of hydration, then monitor vitals every five mins while chemo goes in. Blood pressure crashes are not uncommon in chemo but, of course, they don't tell you that because they don't want you to worry. (I had a lot of trouble with blood pressure crashes and allergic reactions to drugs, and learned to argue with each new doctor for hydration by IV and a nurse to stay with me and monitor vitals during infusions of drugs and blood products which were problems for me.) These experiences are more traumatic than medical people give them credit for. You're already struggling with the way your body betrayed you by developing cancer. You put your trust in the chemo process, are prepared for mouth sores and hair loss, but feel betrayed by it when it threatens to kill you. So hard to trust and to feel safe once you have one of these terrible experiences. My heart goes out to you guys. I'll be sending lots of love and light your way today and wishing you home soon.
ReplyDeleteThinking of you all a great deal today. This is overwhelming from afar I cannot imagine how difficult this would be as a parent; moment to moment, I guess. Thank you for leaving your blog info on our answering machine. I'm sorry for being MIA and away during this very difficult time. You know my heart is with you.
ReplyDeleteI give Sarah an extra hug each day knowing she is already a miracle and how very precious each moment is. (Sarah was relieved to hear that Santa also went to the hospital and Michellie didn't miss out. I only wish life was so simple.)
Look forward to talking to you soon.
Sending our love,
Lori, Jeff and Sarah
Big hugs to you all from the Rankin clan! You know we're all praying for you.
ReplyDeleteCall if you need anything done at the house in preparation of your arrival home. Jude checked out your swanky new driveway last night and said it's 'great'!
Hope we get to see you when you get home, but we understand that precautions are necessary to keep germs away from our girl.
Love, Linda
So sorry you are all facing this. I have heard about things like this happening. Chemo is horrid no way around it. Be patient, the good days will come, but not too quickly. This is a war your whole family is involved. So greatful that you are keeping us all informed so we can continue with prayers and positive thoughts. Be strong for her she really really needs right now...
ReplyDeleteHi Michelle,
ReplyDeleteThis article was published in the Globe and Mail today and it really struck a cord with me in regards to one of my own children and also made me think of Michellie and some of the struggles that you have spoken of in your blog....
http://www.theglobeandmail.com/news/national/how-to-raise-an-orchid-child-to-blossom/article1854895/page2/
Just copy and paste and let me know what your thoughts are. All our best wishes.